Lived Experience Forum

[Razzle]

@Zoe7   Had a win of sorts tonight.  I dished up tea and called mum into the kitchen.  She sat down and ate it without saying a word - she only ate half of her piece of steak but she ate all her veggies so I’ll take that as a win.

Toward the end of the meal she asked where my dad was, he died 2 years ago.  I explained that to her and she called me a liar.  I have his funeral service sheet on the fridge so I got that for her and she had a read of it, then she said “that’s why I haven’t seen him around for a while”.  Then she finished her tea.  Dementia is just as devastating as cancer.  Dad died within 6 days of his pancreatic cancer diagnosis - dementia has had mum for at least 2 years and it’s just slow and cruel.

[Zoe7]

Yea for the win with dinner @Razzle

Demetia is a horrible, slow thing Hon. You are there for your Mum though and can fill in some of the gaps - still so hard for you to be both going through though 

How are you feeling tonight? Do you think you will be able to get some sleep?

[Razzle]

@Zoe7   I don’t know about sleep, I had another drink tonight.  My body feels wound up and jolty like a couple of days ago.  Mums pretty tired tonight so she may head to bed early so I might head early myself and concentrate on my breathing like I did a few nights ago

[Zoe7]

That sounds like a great way to try to approach sleep tonight @Razzle I am heading to bed early myself tonight - been up way too late for the last few days and am exhausted as well. I'm back at work tomorrow so very much need some sleep as I won't be able to rest during the day. Have already had night meds and hoping they kick in pretty quickly tonight.

Have you anything planned for tomorrow?

[Razzle]

@Zoe7  No plans yet, it’s day by day at the moment.

Hope you get plenty of rest tonight before you start work tomorrow.

thanks again for your support ❤️❤️

[Zoe7]

Day by day it is then @Razzle Sometimes that is all we need to do Hon.

It is going to be a long day for me tomorrow as I have to set up the classroom. The carpets and lino were replaced in the holidays after a tap was left on and the room flooded last term. It will probably be a pretty late day for me but I will try to check in with you when I get home. You certainly have my support when I can be here - I do know how hard it is to sleep when you have those visions  - so much harder when you have them in both the day and the night ...and very much hearing how much the lack of sleep is affecting you too. Hugs and hugs 

[Razzle]

@Zoe7   Yikes, you are in for a long day, hope it goes smoothly for you.  

[Zoe7]

Thanks @Razzle  Hope you have a better day tomorrow too. I will be thinking of you Hon 

[Zoe7]

Leaving these for you for when you pop in next @Razzle 

[Razzle]

@Zoe7  ❤️❤️  They’re beautiful !!

thankyou