Flutterbug9’s space

[AlwaysMyself]

Hi @Flutterbug9 , just read through the updates on your infusion & since. I'm glad to hear it has helped your back pain, but sorry to hear the shoulder pain is confirmed as a tear and will take a long while to heal and cease pain. I hope the RFA is able to be booked in soon and helps relieve pain whilst healing. Sorry to hear it looks like no playing croquet whilst the tear heals 😓. Sending you may hugs and care.

[Flutterbug9]

@Cuddlebear @MissGremlin @Bunniekins @Captain24 @Bow 

I had appointment with GP yesterday.  Next week I’ve got appointment for X-ray and ultrasound of left shoulder plus X-ray of both hands.  Script issued by GP for an anti inflammatory med.  something unpleasant said by GP, I managed to get home prior to going into tears.

phone call Wednesday morning from Pain Managenent group.  I’m booked in to go into hospital in 10days time for day procedure.  I’ve been advised I’m on morning list to have Pulsed Radiofrequency Neurotomy in right shoulder.

its all happening so quick and my nervous systems is not coping.  Took me 7 attempts to find people who can drive me to and from the hospital.  One person will drive me out and another will bring me home.

 It all got too much.  I went into panic mode due to getting worried I could find someone to drive me home.

tears …. This entire week, the slightest thing sends me into tears.

atm, I’m waking every morning with both shoulders feel stiff and sore with both hands feeling weak.  Right shoulder is the worst, including pain from shoulder into front of chest plus collarbone.  Night meds are helping get reasonable sleep.  Challenge is trying to find spot that causes least amount of pain into shoulderblade after getting into bed.

one knuckle on my right index finger has become stiff and unable to straighten.  Any pressure on the knuckle of attempts to straighten it cause lot of pain.

Ive told my GP I want referral to a specific orthopaedic surgeon, need results and report from X-ray first

[MissGremlin]

@Flutterbug9 I'm so sorry that the GP said something unpleasant to you sweet and i can imagine it would have been very upsetting. I'm glad you've got an xray coming up and anti inflammatory meds.

I'm really hoping all goes well with the day procedure and that it helps to ease the pain you've been in constantly. Going into a panic is completely understandable given how quickly it's all happening and how hard it was to find people to help, but you got through it sweet and I'm proud of you for that. 

Waking in pain every morning is horrible, I'm hoping this will change when you can get the procedure done. Glad the meds are helping you get a reasonable sleep. The knuckle sounds very painful and I hope you can get relief from that soon too. 

Sending so much love and hugs sweetheart ❤️.

[Cuddlebear]

@Flutterbug9 Hello my friend. How are you? 

I’m glad you got your script but it sounds like you had a bad experience with GP. I’m really sorry that it happened and that you’ve been left crying. 

I can totally understand the panic and anxiety of being scheduled for hospital with short notice. Then having to try to find people who can pick you up and take you home. It takes a lot to do thet when you are unwell. I’m glad you have found two people that can help. My nervous system can’t cope with those things either. I wish I had something to offer thwt might help but I honestly just don’t know. For me nothing seems to help and I don’t want to offer suggestions that might trigger negative experiences. 

I can understand going into panic. I’ve been in panic everyday with panick attacks all day. I cry and struggle so much. I can very much relate and you are also experiencing pain which is hard to live with. 

I am glad you are managing some sleep with the help of medicine. 

I hope the X-ray and investigations being done results and you can then get your referral. 

I am thinking of you. I care about how you are. I’m trying to be around Iys just my nervous system is shutdown and I have awful symptoms from this. Thwts the only reason I’m slower to respond. 

[Flutterbug9]

@Cuddlebear   I spend more time off the forums than on them and have been doing so for awhile now.

Things don’t feel the same to me following the changes with mods and PSW’s.  Things that feel like have led to no PSWs around anymore.  I don’t feel there is support or interest regarding the forums from management, CEO and down.

Im struggling to want to logon to the forums.

feel like Im floating lost 

Everything has added up and my nervous system is paying the price.  Panic attacks, nightmares, isolating and complete lack of interest in everything have become my constant companions

thinking of you and sending hugs

[tyme]

Hey @Flutterbug9 ,

I'm hearing you. I'm so so sorry you have not been well and the changes here haven't been the most helpful.

Please know that when we are here, we are here for you.

I hope you can find a way through this difficult time. 

Thinking of you.

[Flutterbug9]

Thanks @tyme 

A lot of the time now I feel like you are only person who checks in on members and cares

[tyme]

I'm sure others care too. But the change in structure means we are across different services @Flutterbug9 

But also true. The forums mean a lot to me and are very close to my heart.

I know you've had your treatment recently. How has that gone?

[Flutterbug9]

Just saying how I feel @tyme 

the week in hospital and the infusion went well.  Bit of a hiccup one afternoon, the patch that had been put on the previous day to keep the tube for the infusion in place had completely come off and the tube had come out.  Site for infusion gets changed each 2 or 3 days.  Mine got moved to a new site approx 15 hours earlier than had been planned.  My back appears to feel sore fairly easy still.  Could be mixture of reasons.  Review in 6 weeks 

Couple weeks prior to going into hospital I had X-ray and ultrasound of right shoulder and was treated for bursitis.  Benefit of that injection didn’t last 2 weeks.  My pain management Dr had been sent copy of scans and report, I have small tear in tendon in right shoulder, some degree of constant pain for approx 7 weeks now with healing due to take many months.  https://www.google.com/search?q=tear+in+shoulder+tendon&ie=UTF-8&oe=UTF-8&hl=en-au&client=safari 

scans also showed moderate osteoarthritis in right shoulder.  Only help pain management group can do is Pulsed Radiofrequency Neurotomy which involves one nerve only and one needle, needle to be inserted into back of my shoulder in 10days time.

due to some limitation in movement, plus pain, in my left shoulder, I’m booked in to have X-ray and ultrasound on left shoulder.  Depending on outcome of scans, I might be offered to have Pulsed Radiofrequency Neurotomy in left shoulder.  After, what felt, nastily asking why pain management Dr hadn’t requested the scans, my GP expressed concerned with amount of strength I’ve lost in my right hand.   (I don’t have the strength the open screw top on long life milk.  For 4 weeks prior to knowing I have the tendon tear I played croquet, this might have made the made the tear worse)

xrays also to be taken of both hands prior to referral to orthopaedic surgeon.  I can no longer straighten one knuckle in right index finger without causing lots of pain.  Am wearing thumb splints each second day which has helped reduce the amount of pain in my thumbs

upsetting thing that happened whilst I was in hospital was being told a cousin 6 mths younger than me has terminal cancer and that his siblings have known for awhile.  After his older sister told me she said something to me that shows she is not dealing with things.  Words that also hurt due to making my health issues sound unimportant 

[tyme]

Awww @Flutterbug9 ,

Sorry to hear this is happening. And sorry to hear about your cousin. That's so hard.

I know you have a lot on your plate already, and that added stress can really take it's toll.

As for your sore thumb, is that because of oesteoarthritis too?

You deserve to have the quality of life that allows you to do what you want.

I really hope you get some relief from the pain.